TAKE ACTION

We're on a mission to speed up research and find a treatment or cure. We need volunteers to help raise awareness about PSSD so the medical community cannot ignore us any longer.

Volunteering has given sufferers a practical approach to living with PSSD. It has helped to reduce feelings of helplessness and feel a sense of empowerment by taking action.

You will be joining a global community who are working hard to make a difference.

Collage of 16 individual portraits, each with a label reading 'PSSD Patient Spotlight.' The individuals vary in appearance, background, and expression, with some smiling and others with neutral expression.

Contribute to the awareness movement by sharing your personal PSSD story.

Six black-and-white photos of women holding signs with personal stories about depression and mental health, mentioning past struggles with self-harm, medication, and sexual identity.

Share a brief but impactful message on the Photo wall! This campaign has been featured on documentaries and news articles. We would appreciate seeing more submissions from those of you who deserve to have your story heard.

A small green plant growing among scattered coins, symbolizing financial growth or investment.

Help fund research aimed at uncovering the biological mechanisms of PSSD and identifying potential treatment approaches. The more donations we collect, the faster we can find answers!

Person typing on a laptop keyboard with dual monitors in the background.

PSSD is underreported. If we don’t take initiative to present raw numbers, nobody will help us. Find a list of regulators here to ensure your reaction is reported appropriately. Patient reports can lead to increased warnings, litigation efforts, and are essential for increasing interest.

Black background with a white stylized letter X in the center.

Contribute to the PSSD awareness movement by speaking out about your experience on X (Twitter). Your account can be anonymous.

Please use the hashtag #PSSD to find the movement!

*Disclaimer: Everyone has the right to share their story, but DO NOT threaten or harass other users on X.*

Three people holding signs with personal stories about medication side effects and experiences with depression, sexual orientation, and chronic conditions.

Our TikTok videos (@pssd_network) are responsible for many PSSD patients finding out they have this condition. Some of the videos have reached almost a million views!

3D icon of a video camera, representing video conferencing, on a blue background with a soft shadow.

Contribute to the PSSD awareness movement by showing yourself in a video detailing your experience.

Your videos will play a vital role in helping the PSSD Network raise awareness and vividly illustrate the impact of this condition.

- UK Patients only -

UK cabinet members have recommended UK patients to complete feedback reports for Healthwatch. The primary role of Healthwatch is to understand the needs, experiences, and concerns of the public and to ensure these views are heard by decision-makers to improve care. Please consider submitting a report below.

Illustration of a woman with brown hair wearing a pink skirt, white blouse, and navy blazer, waving next to the word 'Healthwatch' in colorful letters.
Cover of a document titled 'The All-Party Parliamentary Group Events' with a logo comprising a white crown and what appears to be a gate on a black and blue background.

- UK Patients only -

Immense progress has been made to get UK MPs interested in PSSD. Lord Alton from the House of Lords has been advocating for PSSD and stressed the importance of getting as many UK patients as possible to reach out to their MPs.

PRIVACY RIGHTS

We understand the importance of your privacy and will ensure that your personal information is treated with confidentiality and never shared.

If you change your mind after a submission, please contact us to have it removed!